Raising a child is a journey filled with joy and challenges. However, when the child has a disability, the journey takes on additional layers of responsibility, care, and, most importantly, time. Let’s shed light on the unique demands placed on parents, the invaluable role of support networks around the world can be a game-changer for these families.
The Increased Time Investment
Parenting a child with a disability often involves a significant increase in time commitment. According to a study published in the Journal of Family Issues, parents of children with disabilities reported spending up to 10 additional hours per week on care-related activities compared to parents of children without disabilities.
These activities range from daily living assistance to frequent medical appointments and therapy sessions. The emotional and physical toll on parents can be substantial, highlighting the need for additional support and resources.
The Journal of Child Care Health also found that increased time commitment required from the parents reduces the time available for other activities, including work, leisure activities, and personal care parents frequently forfeit employment opportunities, leisure time, and social interactions.
Understanding the Extra Requirements
The nature and extent of these additional requirements largely depend on the type and severity of the child’s disability. For instance, a child with physical disabilities may require assistance with mobility and daily activities, while a child with developmental disabilities might need specialized educational support and behavioral therapy. The American Journal of Occupational Therapy notes that children with autism spectrum disorders often require 20 or more hours of structured therapy per week. This level of commitment underscores the diverse and demanding nature of the care required.
National Support Networks
Globally, various support networks provide essential resources to families with children who have disabilities. These programs are varied and offer funding for therapies, equipment, and services, easing the financial and logistical burdens on families. These programs acknowledge the challenges these families face and actively work to provide solutions.
Here are some National Schemes Available
United States: Individuals with Disabilities Education Act (IDEA)
In the United States, the Individuals with Disabilities Education Act (IDEA) ensures that children with disabilities receive free appropriate public education tailored to their individual needs. IDEA covers educational expenses, provides access to special education services, and includes individualised education programs (IEP) for each child.
Australia: The National Disability Insurance Scheme (NDIS)
Australia has a groundbreaking program that provides support to people with disability, their families, and carers. It’s a national scheme designed to improve disability services and provide greater control and decision-making to individuals with disabilities.
United Kingdom: Disability Living Allowance (DLA) for Children
In the UK, families can receive support through the Disability Living Allowance (DLA) for children. This benefit is designed to help cover the extra costs of raising a child with a disability. It’s a tax-free, non-means-tested benefit, ensuring that financial support is available regardless of income.
Canada: The Disability Tax Credit (DTC) and Child Disability Benefit (CDB)
Canada offers the Disability Tax Credit (DTC), a non-refundable tax credit that reduces the amount of income tax individuals with disabilities or their supporting persons have to pay. Additionally, the Child Disability Benefit (CDB) is a tax-free benefit for families caring for a child under 18 with a severe and prolonged impairment in physical or mental functions.
Germany: Germany offers a range of support
Including Eingliederungshilfe (integration assistance), which provides various services for people with disabilities to participate in society, and Pflegeversicherung (care insurance), which covers some of the costs associated with long-term care needs.
The Gift of Time Through Professional Support
One of the most significant ways to support these families is through the gift of time. Hiring a babysitter or a support worker, for instance, can provide parents with much-needed respite. This break is not just a luxury; it’s a necessity for maintaining the family’s overall well-being. The presence of a trained professional can offer parents peace of mind, knowing their child is in capable hands.
So, if you know of a family that comprises a child with a disability, consider a gift of time, be it giving up your own time or organizing and paying for a carer or babysitter. The gift is often a godsend to these families.
Australia is Leading the way in more flexible arrangements
Australia’s National Disability Insurance Scheme (NDIS) allows parents to manage their child’s disability support funds. This means families are able to travel and take their special needs child with them. Companies like Kiddo have established a nationwide network of NDIS Support Workers, booking them is as easy as using an Airbnb app, making holidaying easier. These experiences are vital for the child’s development and provide cherished memories for the family.
It’s also noted those visiting Australia can use the app to find qualified and verified disability carers (you just won’t be eligible for NDIS funding to subsidise the services.)
Conclusion
The journey of raising a child with a disability is complex and demanding. It requires more time, patience, and resources than many can imagine. However, with the support of programs like the NDIS and the assistance of dedicated support workers, these challenges can be navigated more smoothly, allowing these children and their families to experience the full joy and richness of life.
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